Transition Guide

Develop knowledge of patient's health care needs (know medical condition, name of medication and manage medical tasks)

• Parents -Teaching your children with chronic conditions
• Patients -Managing Medication, Understanding your disability
• Providers –Resources for clinicians/pediatric to adult care transition initiative, Education training for health care professionals

Explore work and volunteer opportunities

• Parents -Talking about Volunteering, Help your kid find volunteer opportunities
• Patients -Volunteer Opportunities
• Providers –Workbook 12-14

Answer questions during your health care visit and communicating with your provider

• Parents-Make the most out of your child's visit to the doctors
• Patients-Talking With your Doctor and Other Health Care Providers
• Providers-Health Literacy, Communication, and Self-Advocacy Instruction for Individuals with Intellectual or Developmental Disabilities

Making Medical Appointments and getting prescriptions refilled

• Parents-Scheduling medical appointments
• Patients-Make your own appointments, How to fill a prescription
• Providers-Scheduling medical appointment

Talk to medical providers during visits about age appropriate information regarding physical, emotional and sexual development

• Parents-Talking to your children about puberty
• Patients-Effective communication with health care providers, Adolescent Health Topics
• Providers-Talking to teenagers during visits

Think and talk about transition from pediatric to adult heath care providers

• Parents-Understanding the healthcare system, Transition Timeline
• Patients-Since you are not a kid anymore
• Providers-Helping Patients Transfer and Health Care Transition

Keep a health record, including all medical paperwork and confidentiality

• Parents-My Medical has created an app that can help keep track of test results, store medical histories and monitor your health
• Patients-My medical records
• Providers -Protecting Confidential Health Services for Adolescents & Young Adults: Strategies and Considerations for Health Plans (NIHCM Foundation, May 2011)

Youth spending the majority of health care visit alone with the doctor

• Parents-Speaking up at doctor's office
• Patients-How can I get alone time with my doctor during appointments
• Providers-Speaking up at the doctor’s office

Reapply for Medicaid benefits or private health insurance

• Parents-Medicaid and health insurance FAQ
• Patients-Medicaid,Private Health Insurance
• Providers-Help your patients enroll in health insurance

Reapply for SSI Benefits

• Parents-What You Should Know Before You Apply for SSI Disability Benefits for a Child,Disability starter kits child factsheet for parents
• Patients-Supplemental Security Income (SSI)
• Providers-Social Security Answers for Doctors & Other Health Professionals

Make decisions about power of Attorney or other Guardianship option

• Parents-Age of Majority- Parents Guide, Arizona Guardianship and Conservatorship
• Patients-Five Wishes, Becoming an Adult: Legal and Financial Planning, Arizona State Bar
• Providers-Arizona Disability Law

Transfer medical care from pediatric providers to adult providers

• Parents-Understanding the healthcare system, Transition Timeline,  Journey to Adulthood: A Transition Travel Guide
• Patients-Transition to adult care
• Providers-Transition From Pediatric to Adult Care: Internists’ Perspectives, Care Transfer

Contact vocational rehabilitation o explore vocational assistance

• Parents-Community employment resources
• Patients-Vocational Training
• Providers-What to know about work-based learning experiences for students and youths with disabilities

Explore living arrangements, education, and employment opportunities

• Parents-FYI Transition (from FDDC/USF; web-based learning on transition planning, career and post-secondary education planning, job development and support, health, and independent living)
• Patients-Living arrangements, Independent living
• Providers-Patient Skill Development

Transfer medication to local pharmacy (If moving or going away to school)

• Parents-Managing medications
• Patients-Finding the right pharmacy
• Providers-Helping patients keep in charge of medication

If going to college, learn about health care coverage and health services provided by campus         

• Parents-The special education process explained
• Patients- Heading for College with Special Health Care Needs; Student Preparation for a Successful Transition, Advocating for Yourself in School
• Providers-Transition Planning for Students with Chronic Health Conditions, Essential Role of the School Nurse