Video Lectures
2019
Home Mechanical Ventilation
Cori Daines, MD
January 2019
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Pulmonary and Pharmaceutical Issues
Aerodigestive Disorders
Cori Daines, MD
January 2019
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Advocacy and Family Leadership
Pulmonary and Pharmaceutical Issues
2018
Working with Families of Terminally Ill Children
Tani Bahti, RN, CT CHPN
November 2018
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Behavioral Health and Autism
Caring for the Child with Diabetes
Jeanne Fenn, RN, BC, MEd, CDE
November 2018
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Nutrition, Diabetes, and Food Allergies
Introduction to Nutrition Care in Cystic Fibrosis Education Modules
Kelly Jackson, MS, RDN
October 2018
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Advocacy and Family Leadership
Cystic Fibrosis
Nutrition, Diabetes, and Food Allergies
Pulmonary Function Testing
Nasim Khattab, MD
October 2018
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Pulmonary and Pharmaceutical Issues
Clinical Research Family Perspective
Amanda Sharpe, BS
October 2018
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Research
Advocacy and Family Leadership
Role of Newborn Screening - Family Perspective
Amanda Sharpe, BS
October 2018
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Advocacy and Family Leadership
Nutrition in Cystic Fibrosis Family Perspective
Amanda Sharpe, BS
October 2018
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Advocacy and Family Leadership
Cystic Fibrosis
Nutrition, Diabetes, and Food Allergies
Medication Adherence Family Perspective
Amanda Sharpe, BS
October 2018
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Advocacy and Family Leadership
Pulmonary and Pharmaceutical Issues
Family Collaboration Family Perspective
Amanda Sharpe, BS
October 2018
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Advocacy and Family Leadership
Cystic Fibrosis
Cystic Fibrosis Education in Schools Family Perspective
Amanda Sharpe, BS
October 2018
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Advocacy and Family Leadership
Cystic Fibrosis
Chronic Illness & Support Systems Family Perspective
Amanda Sharpe, BS
October 2018
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Advocacy and Family Leadership
Advocacy and Policy
Lynn Gerald, PhD, MSPH
September 2018
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Advocacy and Family Leadership
Transition to Adult Care Family Perspective Interview
Amanda Sharpe, BS
September 2018
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Advocacy and Family Leadership
Adolescence and Transition
Transition to Adult Care
Mary McGuire, LMSW & Lilly Mees, LMSW
September 2018
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Advocacy and Family Leadership
Adolescence and Transition
2017
Self Care for Caregivers
Mary McGuire, LMSW
December 2017
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Advocacy and Family Leadership
Parent Perspective of Cystic Fibrosis
Amanda Sharpe, BS
November 2017
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Advocacy and Family Leadership
Cystic Fibrosis
Medication Adherence: Challenges & Strategies
Hanna Phan, PharmD, FCCP
April 2017
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Pulmonary and Pharmaceutical Issues
Leadership (and Mentoring and Coaching)
Cori Daines, MD
March 2017
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Advocacy and Family Leadership
Pediatric Palliative Care
Rachel Cramton, MD, FAAP
February 2017
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Advocacy and Family Leadership
2016
Nutrition and Sleep
Patricia Settle, MS, RDN
October 2016
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Pediatric Sleep Issues
Nutrition, Diabetes, and Food Allergies
CF Medications: The What, Why, and How & Asthma Medications
Hanna Phan, PharmD, FCCP
September 2016
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Asthma
Cystic Fibrosis
Pulmonary and Pharmaceutical Issues
Pediatric Allergies
Michael Daines, MD
September 2016
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Research
Nutrition, Diabetes, and Food Allergies